Algorithm for the process of checking for SCID screening results at the routine 8 week appointmentġ. For all infants born on or after 1 September 2021.Ģ. It is advised that practices use this algorithm in their local protocols. Parents and caregivers should be reminded to bring the Red Book and the letter with the outcome of newborn bloodspot screening when they attend for their 8 week immunisation appointment. Parents of babies investigated for SCID and GP practices will receive a direct communication from the immunology team to alert them that a child has a suspected or confirmed SCID diagnosis and this will include information on which vaccines should not be given. This should also include SCID screening not offered. Practices should update their immunisation protocol to ensure that SCID results are available to be viewed by the immuniser at the 8 week immunisation appointment (or sooner), this should include babies moving in from out of area. In the areas included in the evaluation, SCID will form part of the routine newborn screening test at 5 days old. Rotavirus vaccine, usually given at 8 and 12 weeks to protect against diarrhoea and vomiting This should now only be given when the baby has a known SCID screening outcome, usually around 28 days old These are:īacillus Calmette–Guérin ( BCG) vaccine, previously given at birth, to protect against tuberculosis. However, there are 2 vaccines that are live vaccines and should not be given to babies with SCID. Most of the vaccines given as part of the routine childhood programme are inactivated and are safe for them to have. It is important that babies with SCID are appropriately vaccinated. Early treatment can reduce this risk and in many cases cure the illness. Infants affected by SCID become unwell in the first few months of life as they have a much higher risk than usual of developing infection and of developing related complications from infection. SCID is a rare inherited condition that affects the immune system and can be passed on in families. This will form part of the newborn screening test at 5 days. Introduction of SCID newborn screening evaluationįrom September 2021, an evaluation of newborn screening to identify Severe Combined Immunodeficiency ( SCID) is being introduced for babies born in the regions served by screening laboratories in Newcastle, Manchester, Sheffield, Birmingham, Great Ormond Street Hospital and Guys and St Thomas Hospital. This information applies to all babies born on or after 1 September 2021 who will attend for their 8 week immunisation appointments from 27 October 2021.
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